Please stand by…


Just popping in to say hello… I don’t want to abandon my blog!  I have a lot of things I want to write about these days – thoughts on living healthier and better with RA, thoughts on music and identity, questions I’m having about my approach to the disease, etc. etc. etc.  But the truth is, I’m feeling pretty terrible, and can’t seem to bring myself to write about any of these things just yet.  I also really don’t feel like writing about feeling terrible right now. 

I’m seeing my rheumatologist tomorrow, and then I am scheduled to get my next Remicade infusion on Thursday, so I’m hoping that this will be my lowest point – it’s not uncommon for me to feel awful when I’m due for Remicade.  One of the things I want to discuss with the doctor tomorrow is moving the infusions closer together.  Right now I get them every eight weeks, but I start going downhill between weeks 5 and 6, and am in bad, bad shape by this point.

Here’s hoping I’ll be back soon, doing better and ready to write!


1 Comment

  1. Cheryl says:

    Can’t wait to hear more when you’re ready to write. Feel better soon!

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