Archive for September, 2011

When Necking Just Isn’t Fun Anymore…

Wednesday, September 7th, 2011

Spine

Cool, huh? You can see my BRAIN! (Unfortunately, you can also see the fat rolls on the back of my neck – thank you, prednisone!)

So this is one of  many MRI shots of my neck. This one is pretty cool because you can really see the problem, which is right here:

Spine copy

C5 and C6, right in the middle of the picture – out of alignment, with bone spurring, and bulging a little bit into my spinal column. You can also see the problem in the X-rays, although they don’t show the spinal column issue:

Xray copy

There’s almost no space between those two vertebrae, and they are rubbing unpleasantly against each other and pinching nerves when they do. The spine guy said that he sees two different problems – one with the space between the vertebrae, and another involving arthritis of a facet joint. They are manifesting as two different sets of symptoms. The facet joint arthritis is apparently the culprit behind my miserable migraines; he was able to duplicate the problem in his office (which, unfortunately, meant suffering with the headache all day yesterday – ah, science!). The  nerve being pinched between the vertebrae is causing sensation loss in my right hand, which I hadn’t even noticed until the doctor did some tests yesterday. Ironically, I’ve been noticing a loss of function and dexterity in my LEFT hand when I play the piano – no clear explanation for that – and problems with my left wrist, mostly from a ganglion cyst. I guess they caused me to overlook the issues in my right hand!

Anyway, all of this isn’t that terrible. There are much worse things that can happen to a neck, and the doctor says this is pretty normal stuff – not even necessarily caused by the RA, although the RA certainly doesn’t help the situation. He has two different solutions for the two different problems and is going to start with the easier of the two - an epidural steroid injection, done in the OR under fluoroscopy. This doesn’t sound like a lot of fun, but I know people who have had them, and they really seemed to help. He thinks that this will take care of the hand, arm, and shoulder symptoms I am having.

Taking care of the headaches, however, could involve a facet joint injection, which might mean cauterizing some of the affected nerves to kill them off. This doesn’t sound like as much fun. Right now he’s planning to hold off on this – it’s possible that the epidural steroid injection will also help the headaches, so we’re going to give that a shot first. (No pun intended.)

I’m really not thrilled about any of this – shots in my spine don’t sound like a ton of fun. I’ve had steroid shots in my sacroiliac joints, feet, hands, and wrists before. But my neck? Ook…

I would love to hear from any of you who have had this sort of thing done!

And, just to leave things on a more fun note – one of my favorite MRI pictures! Is it me, or an alien? You decide!

alien

Changes

Saturday, September 3rd, 2011

There have been so many major upheavals lately that I don’t even know where to start. This has led to a kind of writing paralysis, and therefore silence on the blog. So let me try to push through it:

We have, at least for now, relocated to the East Coast. My family is out here, so we have much more support, help with childcare, etc. I don’t know how long we will be here – it depends on several factors. We came out here mainly because of issues with the RA. I have some nasty little things going on with my cervical spine, and I wanted to see a really great spine specialist to deal with them. There’s also a great rheumatologist out here, and I’m hoping that he’ll change things up and maybe get me closer to that elusive remission.

Also, Remicade Dream now has a fan page on Facebook! I am clueless about how to use this page and how to get people to “like” it. If you’re a regular reader, maybe you can “like” it, and let me know if you have a page too!  My page is at:

 http://www.facebook.com/#!/pages/Remicade-Dream/142092942551992

I’m seeing the spine guy and the new rheumatologist on Tuesday, so I’ll check in after that and let you know how everything goes.